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Anonymous: I wish there was a way you could show people just how much scoliosis affects you. Like some sort of a challenge similar to the ALS challenge. Or a simulator thing they could be hooked to that shows them what it's like. Just something to prove to them that it really IS as bad as we say. I think that if they had to live with it for 2-3 weeks, they might stop nagging at us about it. They may actually realize that they should have listened to us all along. Then awareness could spread even more.

That is a great idea! I know there are already a few groups in place that help to raise awareness, but you could definitely start your own if you wanted to, and even do something like the ASL challenge! Awareness is so important and definitely vital for people to have a bit more sympathy.

Anonymous: Do you know of any back stretches that us scoliotics can do? When I bend down for more than 3 seconds it's such a pain to get back up. I'm doing Schroth so it stiffens my back even more! Hahaha

Hi there! I have a couple stretches that I like to do outside of the schroth when my back is feeling tense. The first one is like a hanging upside down one, but with your feet on the ground. You bend over like you are going to touch your toes, with your feet spread apart. You can touch the ground for balance or grab onto your elbows to for a stronger pull. The gravity helps to release the tension in your back. Another stretch to try is to find a stable bar and hang from it for a few minutes. This is great for releasing tension as well. This can be done at a play ground or if you have traditional schroth equipment you can just use the top bar. I’m sorry if those were confusing, I would post pictures if I knew how from my IPad. I hope those help a bit!

Anonymous: Hi there! I'm the anon with the thing about my hatred of hearing "get active, handle it or be crippled." In that message, I didn't mean to come off the way I did. I don't sit around all the time doing nothing. I do get out and get active. I try to improve my condition. The times I get mad about hearing that are the days when my back is hurting so bad I can hardly move. I hate when people say that even when they know I do get active. Sorry for the confusion! I appreciate your concern though! :)

Hello again! And aw okay I see. It’s healthy to do some venting so don’t be sorry for sharing, you are always welcomed to do that here!! X

Anonymous: Hi I just found your blog! I had a 7 vertebrae fusion June last year and I'm curious about doing handstands - has anyone else done them since having a fusion? Will I be good to do them again?

Hello! Actually one of my past gymnastics team mates had the spinal fusion and performed all the events including floor (so handstands)! But each persons healing rate and body range of motion will be different and I would recommend you jump right into handstands without feeling it out and really listening to your body first. has any one else who has gotten the fusion done a handstand after surgery?

Anonymous: Helllllo Meg!! Lately I've been wondering if there are any benefits to having surgery, besides internal spinal correction. Right now, I can visibly see the curve in my back because my sides are uneven and one side bulges out more (someone mentioned this earlier). So would surgery also take care of this? Thank yaaaaa

Hiya! The surgery may correct your aesthetic to some degree, but the majority of the time it can leave your spine not fully corrected, and in this position permanently. Before taking the surgery route, I would recommend that you look into some noninvasive treatment such as the schroth method. The schroth had personally improved my scoliosis aesthetics tremendously, to the point that it’s very difficult to see that I even have scoliosis. (Not to mention that it improved my curvatures from 50 and 39 to 27 and 15!) I hope that was of some help :)

Anonymous: I hate how I can feel the way my spine curves when I sit with my back straight or lie down I hate having the constant reminder that I'm bent

I know darlin :( whenever you sit or lay down it’s easier to feel your spine and where it’s uneven. Whenever I become hyper aware of my spine, I sm doubly sure to think of my psychical therapy corrections and to keep the curves from progressing. Stay strong lovey xx

Anonymous: To the previous anon. I truly do care about your condition and I know you're tired of hearing it but YOU CAN GET ACTIVE, GET HELP, CHANGE YOUR SPINE IF YOU REALLY WANT TO. Scoliosis doesn't cause pain if you take care of it, doesn't change the quality of your life, your abilities to do anything.. it is only the way your spine is curved. Nothing more. I wish you the best of luck but please trust me when I tell you, you can change your spines condition.

:)

Anonymous: I am sick and tired of hearing "You can get up, get out, get active, and handle it; or you can cripple yourself." News flash: I am already crippled. Maybe not in the way you think of someone being crippled, but crippled nonetheless. Don't treat me as if I like having a twisted spine, I hate it. It's not a simple matter of just 'handling it.' I wouldn't being sitting or lying around in pain if I actually had a choice.

I’m sorry that people are responding so negatively. They have no idea what you are going through and it is not fair of them to judge you. You are always welcome to vent here.

Anonymous: Hello Meg!! Do you ever find it hard to open up to people (not about scoliosis, but about yourself because you feel like you're hiding something about yourself)? Also, whenever I see girls wearing tight tops, dresses, etc. I get discouraged because of my back- and how I can't confidently sport whatever they wear. Sometimes (please don't judge haha) but I feel like a boy will never love me because of this. Thoughts? thanks :))

Hey lovey! It can be very difficult to open up about scoliosis sometimes, definitely. You should only open up to people you feel comfortable doing so with. It can be hard for a lot of people to comprehend this condition and may be slightly shocked or confused. But, once they learn more about it, they should become more understanding of you. Personally, if the topic comes up, I am quite happy to open up about scoliosis and to show my X-rays. (I find peoples reactions entertaining haha) I like to raise awareness this way and to advocate the schroth method as a testimony to how my life and scoliosis has I improved. I hope that helped, best of luck to you on your scoliosis journey! :) Ps sorry for any errors in here I am responding to this in the middle of a class lecture

Anonymous: Knowing now that scoliosis affects the respiratory system and that you can get sick easily, it has made me realize something else. Ever since 7th grade (age 12/13), I have gotten sick with the flu every Fall/Winter. I'm almost 21. Anywho, 7th grade was the year I hit puberty (aka the time my spine just noped). I remember I just got sick suddenly and ended up having the flu for 2 1/2 months. Like I said, I have gotten sick every year since. I guess I never thought about scoliosis causing it.

Sorry for the delay in answering this, and oh yes scoliosis can affect your entire body from your digestive system to your allergies to your immune system, depending in where the curvature are. I used to have a really great chart with the corresponding body systems along the spine. I will try to find it and post it later ! But yes that makes totally sense. I wish you the best!

PSA

I will answer all asks tonight, sorry for taking so long, I’m still adjusting to this hectic art college lifestyle. Thanks for your understanding!!

Anonymous: Hiiiiii. I have a few public questions for any scoliotics reading this. 1) Do you ever feel pain in your spine when you're eating? 2) Do you notice that the side your bulge (side in which your curve is leaning towards) has more fat on it? Thanks!

I haven’t really experienced any of these, have any of you all?

Anonymous: Hi beauty! I've been doing Schroth for over a year now, and still when I walk I feel so awkward and I feel as if the weight of my shoulders is pushing me down and I always feel so stiff. Do you still feel like this? Have you ever even felt like this? Hhahaha thank you x

Hi there! And congrats that’s awesome! It sounds like that your shoulder and trap muscles are tight, which is very very common with scoliosis patients. I would ask you PT for some stretches to reduce their tightness. And depending on the severity of your curve/ your own body, you may still be adjusting to your corrected positions. Keep up your good work!! I hope that was semi helpful!

Anonymous: Hi! I know a while ago you said that your scoliosis was practically not even visible, is it like this with your side view from where the prominence was?

I would say that it’s really not too visible from the side either! There is a small difference between the two side views, but neither screams scoliosis haha

Anonymous: I really don't believe in restrictions with scoliosis, do you? I mean, of course, you have to be smart and think about what you're doing and if it's really going to affect you majorly. When I asked my schroth PT if I could do this or that all he said was "I don't know, can you?". I love yoga, running, volleyball, soccer, basketball, working out in general and I finally feel relieved to know I can do all those without worry. What are your thoughts about restrictions with scoliosis?

I think scoliosis shouldn’t restrict you too much, as long as you are not overly aggregating your curvatures. I also think it’s up to the individual about how they feel doing certain movements. That is really awesome that you are still going to be doing all of those things! The only thing is to be conscious of your body position and listening to your bodily cues. If done with precaution, scoliosis patients could do any sport they wanted if they set their mind to it! I used to be a pretty hardcore gymnast, but am no longer. I tried an adjusted gymnastics routine for a while and really started loving it, but I felt that I was beating my body up too much since I was still participating in very high impact movements. Another factor was that I was hurting all over joint wise, most likely arthritis. It was really difficult for me to leave the sport I loved so much, but I felt in my heart that it was preventing my back from progressing in a positive direction as quickly as it should. I still miss it, but am sure I made the right decision for my health. So I think scoliosis is as restrictive as the individual’s discretion. :)